Time for February's Mugs of RoC, a way to get to know RoC team members through our most personal office staple: the coffee mug! This month I sat down with Joel Munson, Program Manager at RoC. He goes by Jefe, T. Joel Munson, Joelseph, and Brother Munson, among many other names. Joel is also one of our longest serving team members, hopping on board in the spring of 2014.
Lately at work, I’ve noticed a wonderful thing. RoC hires team members for their heart; their compassion and enthusiasm to help others. These are traits shared by everyone in the organization. The thing I’ve been noticing recently, though, is our differences. Several countries are represented while 5+ languages are spoken. Some are Colorado natives, others moved here only recently. Yet we’re all united in our mission to improve quality of life for our clients.
A quick update at the national level, for all of our fellow research nerds: The Institute of Medicine of the US National Academy of Sciences recently released a report on the health effects of cannabis. The report was originally published in 1999, and has been updated this year, with the most current assessment providing evidence that cannabis has proven medicinal uses for treating:
Furthermore, the Institute asked the government to allow further research to determine the effectiveness and possible risks associated with cannabinoid therapies. Now, as you can imagine, we here at the Realm of Caring Foundation are absolutely pleased to hear this. We started receiving anecdotal evidence daily in 2013 as to the therapeutic qualities, which is what eventually spurred our passion and persistence to create the Observational Research Registry, or ORR, as well as a partnership with Johns Hopkins University Medical School. So far, over 1,400 participants have enrolled.
What makes the ORR opportunity so wonderful is we encourage those using cannabinoid therapy as well as those NOT using, so we can get a good look at a control group, to compare exactly what improvements, if any, there are. If you, or someone you know, is interested in registering and participating, you can do so at this link. If you are interested in donating to our research efforts, you can do so at this link.
Welcome to the inaugural session of Mugs of RoC. We want our clients to get to know us, and what better, or more personal way, than the importance of an office staple: the coffee mug! I’m Nicole, Outreach Director, and your humble translator, on our adventure through the RoC office. We will talk with someone new each month, so stay posted.
Today, we start with Kathy, she’s the first person you see when you come into the office. She’s our security guard, office supply fairy, do-it-all super-woman who’s been known to clear a drain or two, in short, our Executive Administrator.
Nicole: “Say “Hi”, Kathy”
OK, let’s get to know Kathy….
Dear Nicole and Realm of Caring,
I don’t even know where to start, I am so excited, and have to share this story with you.
I have been a member of RoC for over a year. Our 22-year-old daughter has suffered from seizures for 8 years now. Her condition is called dysautonomia. Similar to a migraine, she has seizures, instead of or in addition to, the pain of a migraine headache. Her blood pressure drops and so does she. Unconscious sometimes for over an hour! Learning about Charlotte’s Web hemp oil intrigued and excited me, hoping it could be a treatment for Celina’s dysautonomia symptoms. But living in Canada, as you know, we had to WAIT! There is no cure for dysautonomia. I actually took her to a special cardiologist in Toledo, Ohio for a diagnosis. Not much help in Canada. No anticonvulsant medications helped her either. Similar to the many stories YOU hear every day. An absolute nightmare, looking for answers! Finally, when you wrote to tell me CW was available in Canada I ordered some for Celina, and myself (insomnia and anxiety due to her illness). The Canadian Border didn’t take long to shut it down, as you know. It’s available again…but my daughter isn’t so sure about it. I told her she should take a higher dose, as it has not helped her yet, but she is reluctant. Anyways, that is the brief history of why I know about RoC.
Several months ago in your newsletter, you included a story about a home based Louisiana business, called SECONDLINE JEWELS that supports RoC through their charity proceeds. Roz and Collin get CW oil for their son Finn who has nocturnal seizures. You even highlighted his story in your newsletter. They make jewelry out of broken or recycled drum cymbals.
I was instantly intrigued…because…
Tragically our beloved 23-year-old son Carson died in a car accident on August 1st, 2015. He is a musician, artist, and gardener at heart. Yes, he plays drums, and more recently learned how to play piano…and made & recorded his first solo CD just months before the accident. I was so excited when I read about Secondline Jewels and so I emailed Roz and Collin to ask if they could receive a cymbal from me in Canada, to make jewelry gifts for my husband, me, and our other 3 kids and spouses. They agreed and will be making a donation to Realm of Caring!!! So TODAY the parcel from Louisiana arrived in our little town called Oliver, just north of the Washington State Border above Seattle. I have been so excited about these gifts, I chose a jewelry piece for everyone from their website, and they used Carson’s cymbal to create each piece. I just wrapped them all up for Christmas.
Also when I sent them Carson’s cymbals I sent them his CD and a few family photos. They sent a photo of the two of them, plus MY photos (on the wall in their workshop) and Carson’s cymbal, with the jewelry cut outs,…so that I could place a photo inside each Christmas gift.
It’s been a nightmare, this grieving journey. 16 months seem like days or weeks. Our 4 kids are super close. It’s been a struggle I could never have imagined, even being a nurse and hospice volunteer. Proceeded by our daughter’s illness and many hospitalizations and ambulance rides, the stress has been mountainous, but I found I am more able to cope taking CBD for anxiety. Still working on my insomnia, taking cannabis cookies for that. I had hoped high doses of CBD would help me sleep but I guess I still need a bit of THC.
Roz and I have developed a special bond. We have been emailing lots and sending each other family photos. We both thought it would be cool to share OUR STORY with you. See how Realm of Caring brought us together??!! I think God sent you to both of us, for Finn and for Celina. And now we are joined even more by Secondline Jewels.With thanksgiving and appreciation,
We have received a lot of questions about the recent statement released by the DEA in regards to cannabinoid products. We know a lot of individuals who rely on these products to help improve their quality of life and overall health, and hope to help clarify the impact this action will have for our beloved clients.
First of all, we at RoC are not lawyers, and are still reviewing the "rule" with several leaders in the hemp and medicinal cannabis industries. From these collaborations and studying several legal opinions, we expect our product partners to go on with business as usual, allowing our clients to continue receiving the therapies they rely on.
As we look back and reflect on another amazing year, there have been many wonderful moments from 2016! Here are a few fond memories that made a profound impact on some of the RoC Team. We hope you enjoy the perspective and insight!
Have a happy and safe holiday season.
-The Realm of Caring Team
In 2016...Linnette: What made an impact for me this year was Argentina. Last year Hemp or any product derived from the Cannabis plant was not permitted and now, this year, it is not only permitted to be imported, but also the Argentina government pays for the product so people who can't afford it, can have it! A lot of moms and people in need in Argentina fought hard to be able to access Charlotte's Web and they were successful! It was very nice to see how when people get together and fight for the same cause(s), there is change. I am glad to know Realm of Caring was part of that change. :-)
Kris: I loved the response I got from the community, especially the small business owners I spoke to regarding sponsoring the Run. It seemed like everyone I spoke to knew someone who could benefit from Cannabinoid Therapy and the open-minded attitude and acceptance in our community was inspiring and heart-warming. Minds and hearts are changing when it comes to cannabis and I feel very privileged to see this change, oftentimes firsthand. =) =) =)
Jasmin: A Client has reached out to me over the phone and the first thing he said was "What the heck is in that marys patch? I haven't slept so good in 7 YEARS, because I suffer from PTSD that causes insomnia, anxiety, depression and therefore my mind does not know how to shut off, down or just RELAX! Why hasn't anybody told me about this stuff?" I was so happy to take his call and explain how cannabinoids work in the ECS. By the end of the of the call he was ready to share his story with friends and family, the whole world, if he had their numbers!
Meagan: In 2016, there have been SO many wonderful things happening at RoC, it's hard to highlight just one moment that made my heart sing. One of the most powerful things I've been able to be a part of was Eugene Monroe's visit to Realm of Caring. Eugene is a professional football player that visited with some of our families at the office to learn more about the research we are conducting with John's Hopkin's University to determine the effect of cannabidiol on CTE, a condition suffered by many professional athletes as a result of repeated head trauma on the field. Watching Eugene love on our children and see how deeply their journeys with cannabis have impacted him, was exceptionally moving for me as a parent. We are not alone. That day, Eugene graciously pledged to fund the entire research campaign.
Sam: Having a family drive down from northern Colorado to visit us. Their daughter has done extremely well with CBD therapy, going seizure free for several years, allowing the entire family to enjoy life to the fullest. They brought their infant daughter and called us "heroes" for what we do. It was incredible to see the impact we have on some families.
John: The most impactful moment of 2016, for me, was when one of my closest clients passed away. It made me realize the utter seriousness of the situations we deal with, as well as the dire and immutable consequences that those with serious medical conditions face in their day to day lives. Tomorrow is never promised.
Lacie: Daniel and I were going through a really hard time with the suicide attempt of his mother and the life-shattering Huntington's diagnosis that we received. We had to take emergency leave for a couple of weeks to Missouri and even coming back to work was a very hard transition for me. I was greeted by the team with warm hugs and gentle and assuring conversation. We were given a delicious pot pie that Meagan made for us as well as much needed financial support. They fact that I became a client over night gave me the perspective of just how important we are and how we are impacting mankind in such a positive and powerful way. I love RoC and I am so glad to contribute and be a part of the team.