Raise the Realm Day 1: Ayden- Cerebral Palsy

Our four-year-old son, Ayden, was born fourteen weeks premature suffering a grade four intraventricular hemorrhage. Along with this brain bleed, he suffered a myriad of issues, which compounded the severity of injury. Shortly after Ayden's first birthday we started noticing abnormal eye, arm, and leg movements. Given the circumstance, we knew he would have developmental delay. However, we soon learned that these abnormal movements were in fact catastrophic seizures further regressing his development. It was at the age of 18 months that he was diagnosed with both spastic quadriplegic cerebral palsy and infantile spasms, an epileptic syndrome characterized by an EEG pattern termed hypsarrhythmia. This hypsarrhythmia is essentially a chaotic and disorganized pattern of brain activity that is, in Ayden's case, an expression of brain injury.

Initially, it was uncommon for Ayden to go even an hour without seizure activity. After failing countless pharmaceuticals that only left him with long lasting side effects, we began exploring cannabinoid therapy. Thanks to the Realm of Caring, we found an amazing level of knowledge and support. As soon as we started CBD oil, we noticed a significant decrease in seizures. We also began getting eye contact and even his first belly laugh! It was on the EEG following CBD treatment that our neurologist found he no longer had the hypsarrhythmia.

Though this has improved, Ayden still must cope with the painful debility associated with his muscle spasticity. This exaggerated muscle tone effects all four of his extremities and significantly impairs his daily functioning. Unfortunately, treatment requires more than just CBD, and that is something we do not have access to in our state. If we fail to relieve his spasticity, we face the real possibility of Ayden needing invasive orthopedic and neurosurgery. Contractures, scoliosis and hip dislocation are the most common conditions requiring corrective surgery. Surgeries like selective dorsal rhizotomy, tendon lengthening or transfer, osteotomy and limb reconstruction are some of the most painful surgeries to endure. Imagine your body uncontrollably contorting and being "stuck" in painful positions and instead of being overly sedated from pharmaceuticals, getting relief from cannabis and actually being able to make developmental progress. We know cannabis can help with this as we have traveled to try this for him. Not only does it provide physical relief, but cognitive improvement as well. Ayden is non verbal. The month we tried cannabis, he said "Mom" for the first time. That same day while waiting on an elevator, he looked at a stranger, lifted his head off my shoulder, and said "Hi" to her. This is the relief we see when Ayden can try cannabis. We are fighting tirelessly to have access in our state so Ayden can have that 24/7.

Ayden
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Raise the Realm Day 2: Brandon- Brain Injury

I always thought of myself as an athlete. After playing hockey for several years I joined the high school wrestling team. Wrestling is where I belonged. I went off to MSU where I learned to work hard and become the person I am today. I received a NCAA Division II All-American honors in my senior year.

2008 was the start to my MMA career.

I've always worked hard, but taking care of myself before, during and after each training session wasn't always a priority, until recent years. I quickly realized my body no longer healed the same as it did when I was in high school. Recovery is important to me and taking care of myself quickly became my priority! I started taking vitamins and eating healthier but those changes still couldn't prevent pain or help ease it. My daily routine consisted of protein shake full of vitamins for breakfast followed by a handful of more vitamins like zinc, turmeric, b-12’s, C, Fish Oils, wobenzym etc. and for pain, I don't even want to get started.

Fast forward 8 years, 20 professional MMA fights, 2 ACL surgeries, dislocated ribs, broken hand, multiple broken fingers and thumbs, & broken arm, I was ready for some relief any relief. When I'm in pain I get moody and I become antisocial and withdrawn. I am not the best version of myself in pain. CBD has done for me what I thought only quitting could do. I started taking CBD 3 months ago and it's results are better than I could ever expect it to be. Battling anxiety and muscle fatigue and inflammation, I also struggled with insomnia and as an athlete no sleep means no recovery. I was always in pain or injured, CBD has given me another chance. Protecting my body and brain from further damage and taking something like CBD that treats pain, is anti inflammatory, anxiety and insomnia was a no brained . Now it's part of what I do! My goal is to become a champion, in order to achieve that my body has to be in top condition.

Brandon
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Raise the Realm Day 3: Fernanda- Autoimmune

En Español

(Read in English Here)

Mi nombre es Fernanda y vivo en Argentina, tengo 6 hijos y 3 nietos. Padezco desde hace 15 años de fibromialgia y desde hace 7 años neuralgia del trigémino. Llamado también dolor suicida. Ambas enfermedades no son mortales ni terminales pero tan dolorosas que pueden afectar terriblemente la vida.

La neuralgia del trigémino comenzó con una pequeña electricidad en la cara en forma esporádica y luego de ser diagnosticada y medicada, avanzó año a año, como así la cantidad de medicaciones o tratamientos realizados, alopáticos, homeopáticos, acupuntura etc, sin ningún resultado. El año pasado las crisis eran tan fuertes que el mas mínimo pestañeo, respirar, comer o cualquier rose, me provocaban descargas eléctricas insoportables. Estaba terminando una carrera después de 4 años que realicé con mucho sacrificio y veía que con el dolor lacerante que avanzaba no iba a poder terminarla.

Entre otras consecuencias de esta enfermedad, puedo mencionar el aislamiento, la tristeza, el terror por realizar tareas simples como cepillarme los dientes, o tan esenciales como dar un beso a mis seres queridos. Mi familia me sostenía y acompañaba con mucho amor, y sufrían impotentes por no poder hacer nada y ver mi sufrimiento. En octubre del 2016 saque turno con mi medica decidida a operarme, a pesar de la resistencia de ella debido a los serios riesgos de la operación y sus posibles secuelas. Una semana antes del turno con mi neuróloga escuche en la radio sobre el tratamiento con el aceite medicinal de cannabis y me contacte con el padre de una niña con epilepsia refractaria y que gracias al tratamiento había disminuido las 54 convulsiones diarias a ninguna.

Así que en octubre comencé con el aval de los prestigiosos médicos que me estaban tratando el tratamiento con Charlotte`s Web, y a los 15 días el dolor había disminuido al 60 % comencé a poder sonreír, hablar sin miedo, comer normalmente, dormir. Hace ya 6 meses que estoy con este nuevo tratamiento la neuralgia me disminuyo totalmente y los médicos están muy sorprendidos y contentos de los avances y la eficacia. Pude terminar mi carrera, reincorporarme a la vida social, besar a mis seres queridos y sonreír. Mis seres queridos también sonríen.

Tengo la esperanza de que el aceite medicinal puede ser la respuesta a tantas enfermedades incurables o llevar paz y alivio a las personas que las padecen y sus seres queridos.


In English

My name is Fernanda, I live in Argentina and I have 6 kids and 3 grandchildren. I was diagnosed 15 years ago with Fibromyalgia and 7 years ago with Trigeminal Neuralgia also called "Suicide Pain". Both diseases are not mortal nor terminal, but they are so painful, they affect your life terribly.

My Trigeminal Neuralgia started with a little tingle electricity like sensation sporadically and then it turned into a diagnosis. After being medicated, every year, it got worse as the number of medications increased. I did allopathic, homeopathic and acupuncture treatments with no results. Last year, my crisis were so strong that I could not blink, breath, eat or touch anything without having an electric charge that caused me unbelievable pain. I was about to finish my degree, but the pain did not permit me to finish.

Another consequence of this terrible disease is that it made me lonely, sad and I was terrified to brush my teeth or to kiss my loved ones. My family was supporting me, but they were suffering because they could not help me. In October 2016, I went to schedule a surgery with my Doctor who was against it due to the risk and side effects of the surgery. A week before my appointment with my doctor, I heard about CBD on the radio and I contacted the father of a child whose daughter was using the oil and went from having 54 seizures a day to none.

So, I started Charlotte's Web with the help of my doctors and 15 days after taking Charlotte's Web Hemp Extract, my pain had reduced 60%! I started smiling, talking without fear of pain, eating and sleeping. Today, 6 months later after using Charlotte's Web, my neuralgia is completely out. The Doctors are very surprised about the efficacy of the oil. I could finish my degree, I went back to having a social life, kiss my loved ones and smile. My family is smiling as well.

I hope that this oil could be the answer to so many incurable diseases and that it will bring peace and alleviate all those people who suffer and their families.

Fernanda
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Raise the Realm Day 4: Melody- Rare Disease

As a parent of a child, receiving a “life-limiting” diagnosis is devastating. After months of hundreds of infantile spasms per day, we knew we had to try something different, something doctors were not initially on board with, especially with Melody being only nine months old. The two front-line medications did not stop her spasms, so we took a leap of faith and followed our gut instincts, bought a bottle of Charlotte's Web CBD extract and, with the help from the Realm of Caring we figured out her dose based on her weight. She was not one of the “miracle stories” where the seizures stopped after the first dose, but we were prepared to give CBD a real chance to work, so we agreed to try it for three full months. She continued to have seizures, but after three weeks of Charlottes Web, we saw noticeable improvements in her cognitive development. She started sitting up on her own and was babbling again, a few skills she had lost after the seizures started. After seven weeks on Charlotte's Web, her infantile spasms stopped altogether and since that date, she has continued to improve in all areas, much to the surprise of her doctors. A little girl with Aicardi Syndrome who we were told would never crawl, walk, or talk is now dancing, taking long walks outside, running, and has learned about 40 words. We decided to wean Melody off of Sabril and her last dose was September 2016; so she is now only taking Charlotte's Web and she is beating the odds, one milestone and one word at a time.

We are over the moon watching our Aircardi princess love her life. Melody gives kisses and hugs and smiles and sings, and we know in our hearts she would not be doing these things without Charlotte's Web. Her story gives hope and has encouraged other families to try CBD oil and has helped change lives of other children struggling with seizures. We could not be more proud of our girl and her resilience and we look forward to her future, something doctors warned us may not be possible. Charlotte's Web continues to be the best decision we ever made for our sweet Melly and we remain forever grateful to the Stanley Brothers and everyone at the Realm of Caring and CW hemp.

Melody
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Raise the Realm Day 5: Charlotte- Epilepsy

At just three months old, little Charlotte Figi experienced her first seizure, an experience that would send her and her family on a path that would eventually change the world. Charlotte’s parents were out of options and searching for solutions. Thankfully they discovered medical cannabis. After careful research and contacts, the Figis met the Stanley Brothers. They were able to provide a high CBD extract into Charlotte’s diet, and the results were remarkable.

After the CNN WEED special with Dr. Sanjay Gupta aired in August of 2013, the family featured received an outpouring of support and questions, especially how others could obtain access as well. Enter Stanley Brothers Social Enterprises and CW Hemp.

Today, Charlotte is an outgoing little girl who is thriving and enjoying life, like every other child her age. She recently completed her first full year of school and is now in the third grade. A young fashionista in the making, Charlotte has displayed an affinity for fabulous foot fashion, looking forward to her birthday shoe-shopping trip as much for the new shoes as the chance to ride up and down the escalators. “She is a girl through and through,” says Paige. A self-proclaimed modern artist, Charlotte wakes up each day and heads straight to her paint set. Her masterpieces are influenced by her favorite color orange, and the outdoor serenity that her home in Colorado provides.

Charlotte
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Raise the Realm Day 6: Leigh- Cancer

My name is Leigh. My first personal experience with cancer was in 1995 when my mother was diagnosed with stage 4 ovarian cancer and given 6 months to live. Her name was Charlotte and she was a visionary. She lived for 6 years instead of 6 months and when I was first diagnosed in 2012 with Stage 1 breast cancer I remembered her words…”I wish I had never done that chemo or the radiation.”

I chose to have bilateral mastectomies after determining I was BRCA positive. I declined the pharmaceutical drugs that were offered to me and went on my own path to healing. That path has included exercise, healthy eating and juicing, keeping stress low, being grateful…my recipe changes along with the seasons.
In April of 2016, I began taking Charlotte’s Web for swelling in my right hand from overwork, not knowing the cancer was back. In late June, with the swelling completely gone in my hand, I scheduled a surgery to remove scar/fat tissue from the site of the previous cancer and it ended up being malignant. I upped the Charlotte’s Web to therapeutic doses along with high-dose THC in August and completed 60 grams of The Stanley Brothers’ THC Concentrate in 60 days after moving to Colorado in November. I have just gotten a clear PET scan. I am so grateful that the laws are changing and the research is finally beginning on cannabis. I know had the researchers been allowed to explore the medicinal benefits of this “weed” there would be more wellness on the planet….and my mother could still be alive. I am certain that CBD/THC are main components to my wellness and I am so grateful for the access I have to these medicines.

Leigh
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Raise the Realm Day 7: Kendell- PTSD

I was a Loadmaster on a MC-130P Combat Shadow during the Tsunami Relief Effort in 2004/2005, seeing mass devastation, and unworldly damage. My world was changed just a few months later when I sustained a dislocated and fractured right leg, and Traumatic Brain Injury. I went through the VA gambit, twice tasting the working end of loaded firearm before I finally decided to quit all medications until I found a better alternative. Sleeping medications, anti-depressants, anti-this and anti-that; I knew I couldn't continue that pace for long. After speaking with family, friends, and fellow veterans, I decided to try cannabis for the very first time on my 28th birthday with some of the most loving people I have in my life. The benefits I see not only help with my PTSD, but also positively benefit my physical health, physical abilities and day-to-day cognitive function.

Since my introduction in 2012, I've competed in 4 Warrior Games, and traveled with MSI Mining to install gold mining equipment around the world, and served as the Director of West Coast Operations for the Road Warrior Foundation- providing Adventure Therapy to our military veterans. No other medication in my life has helped me more than Cannabis and CBD. I hope to continue to show the benefits of this organic option as time goes on.

Kendell
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Raise the Realm Day 8: Luke- Autism

Our little boy who we call Baby Luke, is 4.5 years old, and the apple of our eye. He was born what we believed to be a happy handsome little boy and as parents do we loved him unconditionally.

After a few months we noticed that there were issues in Baby Luke's development, so we brought him to the doctors. Approximately 2 years later, baby Luke was diagnosed with Profound Non-Verbal Autism, massive sight issues and a vestibular condition. We were heartbroken as we knew too well what this meant in Ireland and the hardships both Luke (and us as his parents) would have to face to get schooling, OT, speech, and language etc.

Shortly after Luke's diagnosis, we noticed a massive shift in Luke's behavior, not eating, not sleeping, hurting himself and others, we could see his sensory issues explode in front of us driven by the severe anxiety of his surroundings.

We, at this point, have been surviving on 3 hours of sleep a night, at our complete wits end- the continual crying, the no sleep, the violent outbursts, the self-harming- our little boy was not there anymore; he had changed, he was lost in his own mind, his own condition trapping him to this behaviour.

So, we reached out to doctors, the prescriptions kept coming but nothing worked! So at the last point, we tried Charlottes Web Advanced Solution, starting at 0.2ml twice a day and adjusting the dosage along the way. In the first night, Baby Luke slept 9.5 hours! He was 24 hours away from being admitted to a hospital by our GP for refusing to eat in over 5 weeks and what did our boy do? He started to eat ! Yogurt, apples, bananas, fries, pasta, we couldn't believe it. We cried and cried, as parents angry at ourselves for not trying this sooner, but then tears of joy that our boy would not require a feeding tube.

The results were and still are so amazing that we had to share our story with everyone who would listen. ASD parents have to see with the own eyes to believe what it does.

We started an awareness campaign called Life Being Blue on Facebook. I would recommend any parents in Europe that are on the fence to look at the daily videos look at what it has done for our son and family! Our little boy had gone from skin and bones and riddled with social and neurological disorders, to a child that is trying to communicate trying, to learn and nearly singing! Seeing is believing and Baby Luke's Videos are there for everyone to see!

There is nothing to loose and much to gain!

Please share our page! Education on this is key people who live with severe ASD need to realize that CW is a possible solution to regain a standard of life. And this is key it's about potentially gaining a standard of life.

Daddy Luke, Mommy Donna and Baby Luke Luke
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Raise the Realm Day 9: Mary- Pain

Hi! This is Mary, and Its been almost two years since I participated in Evolve the storytelling project presented by Realm of Caring Foundation, and I wanted to update everyone on how well I'm still doing almost two years later! For starters I'll be celebrating my 59th birthday in a couple of months, and I'm holding steady! Better then steady actually! I'm sure most of my doctors thought all my canna meds (CW, THCA & THC) was going to be a placebo effect. Still they couldn't deny the decrease in pain, increased mental clarity, and my 58 pound weight loss since I started taking my canna meds in May of 2014. The biggest benefit for me was getting off all my prescriptions except for 2 1/2...thyroid, hormone and blood pressure being the half. I did have a setback when my doctor agreed to ween me off my Zoloft after 23 years of use because I was having breakthrough anxiety. That Was A Big Mistake to do that right after Thanksgiving and before the December holidays and to date the hardest thing I ever put myself through. What helped me through that rough spot was upping my canna meds and changing to 200mgs SAMe, (Zoloft replacement) meditation, therapy, a wonderful husband, friends and the RoC community! Keep the faith, and when they (the doctors, the specialist, the government) tell you there is nothing they can do but pump you full of pharmaceuticals call Realm of Caring! The caring of their patients, clients, the quality of the products they recommend, and the fact that they will have your back every step of the way! I say Thank You! Thank You! Thank You! Here's to a better quality-of-life!!!!!

Mary
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Raise the Realm Day 10: Addy- Brain Malformation

Before Cannabis:
Addelyn was born with a significant brain malformation that causes her to have seizures that are very difficult to control. When Addy’s seizures started at 5 months of age, we fought them with an army of traditional antiepileptic medications legally prescribed by her epileptologist. It was then we learned the dangers of these medications. Overly medicated, Addelyn basically stopped living. She slept 22 out of 24 hours each day, suffered significant developmental regression, and stopped interacting with the world around her, including her loved ones. We carried her body through life with us for months and were provided with palliative care counseling for families with a terminally ill child.


After Cannabis:
Within five minutes of Addelyn’s first dose of a high-CBD oil, she smiled. At that point, there was no doubt that this treatment option would make a positive difference in her life. Over the next year, we slowly added more cannabis to her treatment regimen and reduced the standard pharmaceutical drugs that were holding her hostage. Slowly, we got more Addy back and maintained reasonable seizure control. Addy is not “all better”, but is SO much better than she was. Today, she smiles, laughs, hugs her brother, and is even eating by mouth once again- all skills robbed from her by the traditional prescription medications she was prescribed. Her development continues to amaze us. Last week, Addy said, “Momma” for the first time and she is learning to use an augmentative communication device. She even attends preschool with her typical peers. Our family is SO thankful to have found a safe and effective therapy that has given Addy a quality of life that is worth living again.

For the latest visit Addy on Facebook

Addy
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Client Spotlight: Chris

I tried several brands of oils and now I buy Elixinol only because of consistent quality. I had issues from one bottle to the next from competitors and Elixinol has been consistent and excellent for my usage.

I first bought the oil to combat stress, as drugs have failed me or worsened my condition. Anxiety feels physically painful at the extreme; I now lead a much calmer, peaceful existence with absolutely no mood impairment or cover up. Elixinol works nearly instantly when administrated under my tongue.

Here's a list of results thus far:
  • At 63, I wear stronger glasses each year. I have been using Elixinol maybe 3 months, now on 3600 strength. When I spoke with a doctor on the phone, he asked about eyesight which is driving me nuts. He suggested I get last year's glasses. I am now using a prescription from April 2014.
  • I have some rosacea on my very fair skin, topical application has reduced size and redness, continuing use. I also have shingles on lower back, and the pain is gone, the length of breakout is reduced by about half and the blistering was gone within hours!
  • As to anxiety? I have woken up nightly and in the A.M. for about 5 years with painful heart pounding, gasping for breath in terror seemingly for little reason. I been able to discontinue a prescription medication- 1 down, 2 now gradually decreasing strength. Depression has lifted. I wake up fine, and am returning to a noticeably happier person; my entire family has noticed.
  • Just yesterday I ate too much sugar (danged holidays), last night the acid was burning (pretty agonizing feeling) my throat, and I have no problems with that in my normal diet. About 1/2 dropper-full of 3600 and it was gone. I'm a tad tired from sugar poisoning but no lasting gastrointestinal effects. Although I'm fairly careful, I once did take prescription drugs for this- genetically this acid reflux caused gastro/esophageal cancer in my father and grandfather. I am fortunate that my diet has helped as long as I follow it - but it was Elixinol that settled it last night, nothing else has EVER done it- prescription or over the counter.
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    Client Spotlight: Jeremy

    I have been diagnosed with PPPD (Persistent Postural-Perceptual Dizziness), PTSD, high blood pressure, Diabetes Type 2, and high LDL and Triglycerides. I have lived with migraines and severe dizziness 24/7 since 2011 and have suffered from the migraines as long as 2005. I was prescribed twelve different antidepressants and antipsychotics and they all made me extremely suicidal and depressed. I was out of ideas and was ready to call it quits.

    My doctor, neurologist, and two psychiatrists recommended I check out CBD oil for help. I started doing research and about 2 months went by before I tried contacting Realm of Caring. They were very friendly and helpful through the entire process of me asking questions, etc. After about 2 months on Charlotte's Web Everyday Advanced CBD Oil, I began to realize that my horrible thoughts were going away. I have been on CBD since July of this year and can now laugh again and have almost zero thoughts of suicide anymore. For someone who lived with the thoughts every single day of his life since he was very little, this is a wonderful change. My blood pressure checks out perfect every time I visit the doctor now. My blood sugars are easier to control.

    The only things left that I struggle with the high LDL/Triglycerides and the dizziness, which is extremely bad, but that's MUCH better than where I was just a few months ago. It's been worth it to me and my family and friends. I'm so glad that I decided to give this a try!

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    Client Spotlight: Ciara

    Miss Ciara has had seizure's since birth, she has a CP diagnosis, a seizure disorder, microcepholoptomy and recently was re-diagnosed with LGS - Lennox-Gastaut Syndrome... we have faced challenges since the beginning and given no hope or encouragement of healing they just painted a glim picture... But I told them her life will be what we make of it & I am doing my best to give her the best life she can have with the challenges we face. When I heard about the Marijuana - CBD- Hemp Oils helping with seizures, I was excited and filled with hope, especially after reading testimony after testimony of it working for all these kids just like my Ciara... Since the first dose, the first day I have been seeing a huge reduction of seizures, like almost obsolete! Seen an increase in her keeping her eyes open, seeing her happier and laughing. Seeing her kick her legs with excitement. It is a true God given gift what God has given us in this plant. It's time to debunk the myths, time to end the prohibition on Marijuana.... for my Ciara, and for all those like her & others facing/dealing with other situations in their lives.
    I am thankful for this CW Everyday Advanced, it is the miracle we have been waiting a lifetime for.
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    Client Spotlight: Patricia

    At the urging of my oldest daughter, I purchased Charlotte's Web 1 oz, 200mg bottle of hemp oil. When I was 28 (1988), I came down with CFIDS/Fibromyalgia. The first 7 years I was bedridden. I slowly improved, but I've never enjoyed good health since then. I stopped driving about 5-6 years ago due to severe brain fog. Bodily pain varies; what afflicted me most has been frequent migraines, severe fatigue, a definite feeling of malaise, light and sound sensitivity (so bad I had to quit going to church and other functions); the list goes on and on.

    Due to some swelling, I couldn't walk from the pain for over 2 years. On 'good days' I'd try to go for nightly walks but usually had to turn back after just walking past 3 or 4 houses. It wasn't fun; living in the dark and trying to find fulfillment doing basically nothing. I started taking the hemp oil six days ago: half a dropper full twice daily. I cannot even begin to tell you the improvement I've seen in that short time!! I feel mentally alert again. I no longer have that deathly morbid fatigue. My mood is ...dare I say it... almost happy! Things that I had to force myself to do I now do naturally and without thought. And best of all....I have taken 1 mile walks every day since taking it with absolutely no problem!!!!! Smiling, no pain, no fatigue, for the first time in many years!! No way could any placebo effect cause this. I have tried so many things with sometimes disastrous results, and to tell the truth, had resigned myself to a lifetime of misery...It is awesome feeling like my old self after over 28 years.
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    Client Spotlight: Taylor

    Taylor started on the CBD oil in December 2015 with Neurologist approval. So the new journey began...

    It started out just stopping every seizure without the use of the heavy duty Diazepam rectal gel. To, currently, preventing them all together. Going on 120 days seizure free on the Charlotte's Web CBD therapy. There have been a few mild break thru seizures previous to this seizure free streak, but mild and very short lived compared to what they were before the CBD oil therapy...and with absolutely NO side effects! This is now mandatory to keep the seizures and other issues under control and at bay. Taylor has shown great improvement in seizure control with the oil. Moods are better, No Diazepam needed, and NO seizures currently. Taylor has been able to come off of every prescription pharmaceutical medication out of the 8 he was on except 1 of them, and once he is seizure free for 6 months he will be able to wean off that final pharmaceutical medication. So to this family, Charlotte's Web, Cannabidiol therapy oil, has proven extremely effective and has went above and beyond "said claims". It's like a miracle! I cannot express the magnitude of the positive impact these oils have had on their lives and seizure control! CBD oil helping is great, and wonderful news and a miracle to see happening for their son. Thanks to this amazing "Side-effect free", natural oil, our son is happy, healthy, off big-pharma medications and is seizure free! He has his life back and that is the biggest blessing. We have all we ever wanted for him, good health, happiness, and on the road to life without seizures. So far so good. Whether it decreases them 50%, 75% or 100% , it is all a positive change for him and proof the oil works. It is far better than the 0% he was getting on the pharma medications for all his issues. It is fantastic to see him smiling again and to be able to finally say, "I have Epilepsy... Epilepsy doesn't have me!"

    The future may not always be clear or look bright. Sometimes it's like you are given a timer as to how long you can look in life, but no matter how the future looks, we have to look up to the sky, keep our heads held high and pray. Hold on to hope, because sometimes, that's all you've got. Hope , faith, and love... that's what get's us through.

    TAYLOR IS OUR CHILD, A CHILD:

    A REAL PERSON, WITH REAL STRUGGLES. WHO DESERVES A CHANCE AT A NORMAL LIFE.

    CHARLOTTE'S WEB IS GIVING HIM THAT AND MORE!

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    Client Spotlight: Benjamin

    A New Journey – Learning, Love and Policy

    Sadly just 10 days after our son’s story was published in the local Highlands Ranch Herald for making it four years and nine months seizure-free, Benjamin started having seizures again Thanksgiving night 2015 which was nine months after he was weaned from all pharmaceuticals.

    Benjamin 14 years old began to have Tonic-Clonic type seizures every few days with some lasting up to four minutes in length; he had four of these within 14 days into December. It was advised by his neurologist at the Denver Children's Hospital that we put him back on pharmaceuticals. After some research and a new article that expressed recent warnings from the FDA in regards to suicidal thoughts and actions as a side effect of 11 anti-epileptic drugs, three of which Benjamin had been on before and was being asked to take again, did not seem like an option any longer! So in mid-December I made the decision to start Benjamin on Charlotte's Web Hemp Extract after contacting the Realm of Caring in Colorado Springs on how to purchase Charlotte's Web, and help me with dosing so that we could keep Benjamin seizure-free once again in a natural way without side-effects!

    Within a couple of days I shared the news of our new therapy change for Benjamin with his school nurse as I had for any other medication change over 10yrs since pre-school (I also included in the email, his teachers and principal). I knew we lived in Colorado and marijuana itself is legal and though I am giving my son hemp extract which is considered a dietary supplement that can be mailed to all 50 states; I did not think that we would have legal issues surrounding our choice for our son to have an alternative medicine.

    To my surprise I received a call from Child Protective Services three days before Christmas asking me if I had a prescription to give my son Charlotte's Web. In my inquiry to find out who reported us I would eventually be threatened with a caseworker if I did not comply with the child welfare administrators request for me to provide two doctors notes. I quickly realized that she was expecting me to have a registration card for my child taking a dietary supplement which she was requiring under article XVIII in section 14 of the Colorado Constitution as it applies to medical marijuana. I was able to point out to her that if she just read a little further in section 16 of the Colorado Constitution as it talks about hemp, it is exempt from being referred to as marijuana and therefore I was not required to provide a registration card to give my child a dietary supplement of hemp extract. This would later be confirmed through the Colorado Department of Public Health and Environment (CDPHE) who provide the registration cards to medical marijuana patients and they would also tell me that if our child is taking hemp we do not need a registration card! So after educating our local Department of Health and Human Services on the differences between hemp and what they consider to be a marijuana derivative she changed her tune and asked for a list of prescriptions that my son was taking and only then would she closed my case but not until after Christmas. She let us believe through the whole Christmas holiday weekend that we might be paid a visit. We feared that if the caseworker came to our house that we would have lost our son over a dietary supplement they knew nothing about, all in retaliation for asking questions.

    By asking questions it would be revealed to us that we were reported for a "suspicion of abuse and neglect" because we told the school that we were giving our child Charlotte's Web. We were not asking to give it to him on school grounds or asking a nurse to administer it, we were just merely stating that we were changing his therapy at home but they could watch for any changes at school since they were with him the majority of the day! We figured out it was the school nurse based upon what she said in the transcript read back to us, since CPS could not give us a name of who reported. It would be expressed to me that nurses are mandatory reporters in the community, in an effort to mitigate any wrong doing. However, I would discover the school district had actually recommended that all school nurse report ALL FAMILIES on a suspicion of abuse and neglect regardless of whether they thought parents like me were abusing or neglecting my child. The school district actually felt by having their nurses report families to CPS they were protecting themselves, whether a family was providing their child with what they consider a marijuana derivative including hemp.

    Of course I had every right to report the school nurse to the Department of Regulatory Agency (DORA) for false reporting. In her report, the nurse stated that "the child is very safe and family very loving" which would be a contradiction to why she would report based upon a suspicion of abuse and neglect. She also added, she was only reporting us on a recommendation by her employer so that she would not lose her job. Since I have a history of working with nurses in my past position as an administrative assistant (in the healthcare field); I did not feel it was ethical for an employer to demand their nurses to report families like ours when they did not equip them with the educational tools to make the right decision, on cannabis or the laws surrounding it. I never reported the nurse. It has been very important for me to not only look out for my family, but also for those who are responsible for looking after my child. Part of my mission was to make sure the school district was not pinning nurses against families and vice versa or families would be hiding in the shadows due to a lack of trust!

    Within the first couple of weeks into the New Year 2016 I would be introduced to Stacey Linn and hear her story with son Jack Splitt, a young man just a little older than Benjamin with cerebral palsy who was not allowed to have his medical marijuana patch on at school. Stacey Linn passed Jack's Amendment in 2015, so school districts could start writing medical marijuana policies for their students and allow medical marijuana to be administered on school grounds in a discrete location. Unfortunately no school district wrote policy for medical marijuana because it was only recommended at that time.

    Stacey Linn would accompany me to meetings at the school district where we asked questions why they would demand their school nurses to report families like us to Child Protective Services for giving our children alternative yet legal medicine. The school district felt it was a liability for their nurses and they were in fear of losing Federal funding if we brought cannabis on campus to give to our medically fragile children. I would eventually file a case with the ADA (Americans with Disabilities Act) manager at the school district since I found it discriminatory for nurses to reporting children to Child Protective Services when most of these children are medically fragile, are usually on an IEP (Individual Education Plan) and the school district gets Federal funding for these children. It was quickly realized that the school district like others in Colorado had not written a policy surrounding medical marijuana, cannabis, or hemp etc... My job turned to working with school board president Meghann Silverthorne and vice president Judith Reynolds to get a policy rolling in Douglas County, and I had their support right away! I attended every school board meeting since February to bring light and educate the other school board members what happened to us and how we would like to see a policy not only implemented here, but our nurses educated so what happened to us would never happen to another family!

    Stacey Linn would eventually start working with Representative Jonathan Singer to bring forth HB16-1373 "Students Medical Marijuana Use At School" also known as “Jack’s Law” to legislators at the State Capitol, so that school districts in the entire state of Colorado would have to write medical marijuana policy! I and a lobbyist by the name of Cindy Sovine-Miller were brought into help with the grassroots efforts in spreading the word about this new bill along with many other parents who were fighting for this too! One day with Benjamin at the Capitol, we ran into our Conservative Senator in Douglas County, Chris Holbert. After hearing our story, offered to Co-sponsor HB16-1373 in the Senate especially for Benjamin. Since the bill mainly laid out plans for medical marijuana in regards to Article XVIII in section 14 of the Colorado Constitution it was not applicable that hemp in section 16 of the Colorado Constitution be brought into the bill since they are different. It was still up to me to make sure that when my school district was writing their policy that they differentiated hemp from marijuana, but the question remained if they would since a Colorado Springs school district D49 would be the first in the state to adopt a medical marijuana policy though they did not differentiate hemp as I suggested in a school board meeting they held in the spring.

    After 91 of 100 legislators between the House and Senate voted YES on HB16-1373, on Monday, June 6th 2016 with Benjamin looking over Governor John Hickenlooper's shoulder, he sealed the deal by signing HB16-1373 "Students Medical Marijuana Use At School" into Colorado law! We were a very proud family to be there at that moment in time, with Jack, Stacey, along with other families watching history being made! Benjamin and Jack would be given one of the pens the governor used to sign the bill with as well!

    Our job was not done just yet, we are now in the implementation stage. We received word that the Douglas County School District board of directors will be presenting what we call, “Benjamin's Policy” at the next school board meeting on Tuesday, July 19th 2016! Not only will the school district be taking into account Jack's Law (we just passed regarding medical marijuana), they have also heard my request to differentiate hemp oil, cannabinoid products as well as add the following to protect the nurses and staff:

      "District employees shall not be obligated under district policy for reporting suspected child abuse or neglect based solely on the parent or guardian administering medical marijuana, hemp oils or other cannabinoid products in compliance with this policy. This is not intended to alleviate any employee from his or her reporting obligations under applicable state law."

    Even though D49 was the first to vote on their Medical Marijuana policy, Douglas County is actually the first to write a comprehensive Cannabis policy that includes the Administration of Medical Marijuana, Hemp Oils and/or Cannabinoid Products as well as protecting their staff and end the criminalization of families trying to give their medically fragile children a better quality of life!!!

    We are proud of our school district that heard our requests and wrote a policy that fits the need in our community, this way families who have been hiding it can come out of the shadows, and nurses do not have to fear losing their jobs when they know we are actually helping our sick kiddos!!! As of Saturday, July 16th 2016, Benjamin will be seven months seizure-free, but not only is he free from seizures again, this time his world has opened up more thanks to Charlotte's Web Hemp Extract, his memory has improved to the point he can sing along to songs on the radio because he can remember the words. He was able to read short speeches before legislators this year, but he would have never been able to do that prior to Charlotte's Web. He is communicating, learning and building things…without any adverse side-effects...life is good for Benjamin and it was worth the fight so others would not have to worry about what we went through!

    When I think back to the mom I was 11yrs ago when Benjamin was first diagnosed with Epilepsy at 3yrs old. On how the pharmaceuticals scared me and changed my son in negative ways...I realized my fight this year was for the scared mom I was 11yrs ago. I wanted this alternative back then, but if I had to fight this fight for cannabis back then I would have not been strong enough to do what I did this year!!! It was worth it all; even for the parents who do not yet know they might need this same alternative one day, but will not have to fight for access in schools in Colorado!!!



    Written by Amber Wann
    Permission is given to share all or parts of our story in a way that would benefit others!

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